Raphael

I praise You for I am awesomely, wondrously, made; Your work is wonderful; I know it very well.

School

Kindergarten


Major

Sweetness

Year

just starting!

 
 
Name: 
Raphael Yohanna 

Which means: 
The Lord Heals  
God is compassionate

Age: 
6 years

Birthday: 
Sept 8

Hometown: 
Raleigh Nc
FAVORITES

Movies:

Thomas the Tank Engine, Cars, Signing Time, Cookie monster episodes


Songs

Lord, I Lift Your Name on High

If You’re Happy and You Know It

Give Me Oil in My Lamp

Pussycat Pussycat


Books

Animals on the Farm, Monkeys Jumping on the Bed, Dumbo and any Thomas the Train!


Food

Spaghetti, french fries, chocolate and meatloaf


Colors

Bright ones, especially if they dance to music!


Travel Destinations

Where ever Mom goes I go, but I love the park, anywhere that has a swing! I have been visited Virginia, Tweetsie Railroad, South Carolina, Arizona  and I really enjoy all beaches!

 
Contact Info
Email: Try my mom.. 
Instant Messaging: ???
Groups: Playgroup on TDSN, Abilitations Therapy, Cuteness 101

Did you know?


Recent surveys were taken of young people with Down Syndrome, and 99% of them reported being happy with their lives. 97% of them claimed to be happy with who they are! (Find me any other population with those satisfaction rates and sign me up!!)


97% of their siblings claimed that they wouldn’t exchange their Down Syndrome sibling for a typical sibling. 88% of their siblings claim that having them in their lives made them better people.


Yet, 90% of pregnant women who are tested choose to abort their baby with Down Syndrome and testing has become easier and earlier, so many expect the abortion numbers to climb.


This is seriously sad.

Raphael joined the family and took us all by storm. We chose his name which is Hebrew for The Lord Heals well before he was born and we had no idea how appropriate that would be. He had to teach the doctors and nurses a few things before he could come home, but home he came and took over our hearts in ways we never could have imagined. We know that the Hebrews believe in an angel by the name of Raphael, who was known to be kind to travelers and was a healing angel. Indeed he is.


Raphael was diagnosed with Down Syndrome shortly after he was born. Down Syndrome goes by the name Trisomy 21, as he has an extra chromosome on the 21st one. This little extra addition into his makeup can cause all kinds of complications, and impacts all of his systems in some way. We have been blessed in that some of the more severe complications such as heart defects and infant leukemia have not been a part of his story. However, he has had a hard time with his breathing since he was born, and this has led to wide spread delays in his development. He is catching up though! If you have questions about Down Syndrome please be completely comfortable in asking! We are members of the local support group, called Triangle Down Syndrome network. It allows all the folks in the neighborhood who enjoy the special privilege of having a child with Down Syndrome get together and share our struggles and joys.


Children with Down Syndrome are changing the world! I read somewhere that in the 70’s in the US, 90% of children born with Down Syndrome were institutionalized, and they had a life expectancy of 9 years. They were thought to be unteachable. Today, they have a life expectancy of over 50 years old and beyond! They are now going to college and finding jobs. Families who fought to bring their babies home and teach them, have made a huge difference in the lives of these precious lives. Medical advances in repairing heart defects and childhood cancer have made these strides possible.


Raphael currently enjoys his kindergarten a great deal! We found a great match for his personality and abilities and he has been blooming at school. He has had some health issues that have kept us on our toes, but he is a big strong boy growing up so fast!